Thanks to everyone who made it out to the first organizational meeting on the 13th. It was great meeting everyone and hearing everyone’s story about polio. Select Specialty Hospital was gracious enough to host us and serve a dinner of Cornish hen, veggies, and dessert. After dinner, we got down to business. It was a successful organizational meeting. After discussing and reviewing the proposed bylaws and Articles of Incorporation, we elected temporary officers. Mark Ravenscraft is the temporary President, Tom Nicholson was elected Vice President, and Bill Jones now holds the position of Secre
tary/Treasurer.After the elections we listened to a terrific speaker--Dr. Don Rapp. He spoke about the importance of maintaining balance and agility. He also delighted us with his juggling skills. Dr. Rapp shared his recently published book, On Balance: Mastery of Physical Balance for Life, with us. To learn more about Dr. Rapp, visit his website at donrapp.com.
We encourage you to spread the word about this group. The newly organized Capital Polio Association welcomes and invites anyone who had polio, or is a relative, friend or co-worker of a polio and/or is interested in helping to support more public education and awareness about the effects of post-polio syndrome.
For those of you who were not able to attend, we hope you can make it out to the next meeting in June (date to be announced).
4 comments:
I wish you more success than I had when I tried to organize a PPS support group here in Tallahassee in 1994-95. That group lasted just under one year. Having been recently diagnosed with PPS at the time, I started that group (Big Bend Polio Survivors) as much because I needed some support as because I had support to offer. When I formed the group I had free access to Xeroxing, so I provided those who attended the first few meetings with copies of all the useful information I had assembled at that time. It eventually was discovered by many who came that I had no easy answers to their disability problems and that there was no "magic bullet" to cure PPS. Attendance tapered off to only three of us, and the group disbanded finally when one of those had other obligations. I am 60 years old now, and I had polio when I was three years old. Though other parts of my body were affected (as I think we all know now), my legs were both paralyzed. I was walking again by the time I was five and I started school on time. I never wore braces, though they might have helped in my early years. I had about 40 good, active years, doing mostly what I wanted to do, but then I "crashed and burned" beginning slowly in my mid-40s. It took me a lot of time and a lot of questions to find out what was happening to me. My failing body forced me to end what I had thought was a good career toward the end of 1995. Now, mostly out of pure stubbornness, I still walk a little, though not far and with great difficulty using canes or a walker. Good luck to you all.
Woody
I am a polio survivor who caught paralytic polio at three months of age. I healed from the infection and lived a normal life. I have a wonderful family and had a successful business until Post Polio attacked me in 1998. Post Polio for most polio survivors is far more devastating than the original infection. When I look in the mirror I see a normal fifty one year old man. The pain and weakness at times are almost unbearable. Great article!
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